Arthroadventure

This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Thursday, February 25, 2010

bens feet



bens feet are relapsing. his shriners AFOS were too big. they were hurting him and his feet were sloshing around in them. now we have an appointment for new afos but I wonder whats the point? its our dime this time and if he is going to have to fix those feet and then get MORE afos why bother now? Not sure what to do. he doesnt even yet have a doctor to tell about the problem. for comparison his feet then and now.

3 comments:

  1. I think you should find a good doctor first, otherwise you may end up having to make another change and that all starts to get expensive. Any luck finding a new one? There has to be someone who knows about this condition and is willing to do something to help.

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  2. finding a doctor has proved difficult! yes we are holding off on new afos. on our dime now so not much sense in getting new ones and then new ones again in a month after we find a doctor.

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  3. He is so adorable. I just LOVE that smile!

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