This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Tuesday, November 23, 2010


casting is almost done for sophie and ben and then they will have tenotomy surgery and new casts for several weeks. No date for Sophie's Osteotomies. Sophie will need to wear AFOs (she calls them foes) full time to help prevent relapse. Ben already is used to wearing his full time. Guess I ought to invest in some smart knit socks for her. I am not going to find knee high socks in her size. Her feet are the size of an infant. She has been getting up on her feet in these casts. amazing! I cant wait to see her straight and in line!!!

Wednesday, November 3, 2010

due to scheduling difficulties we had to delay our trip to philly. We are going back tomorrow. new casts! Ben has gotten so he can stand on his and can almost let go and balance! amazing!