This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Friday, November 6, 2009

fun new way to work those hands

sophie took all the books from the book box one by one. then she put them all back. and then she sat in the chair with them and tossed them over the side. She keeps trying to use her mouth to do things but ugh that just seems yucky!

Wednesday, November 4, 2009

still not much to report.

application is in to Shriners. Waiting to hear if they are accepted. I have a call in to them to see how long it might be before we hear anything. They need treatment BADLY. Eric is lining up H1N1 shot for Sophie when they come in. As Sophie grows its going to be harder to take her to the toilet the way her body is shaped right now. Its hard on my back now and she weighs less than 30 pounds. Ben stumbles and falls so much, the poor kid. he cant hardley walk 10 steps without falling down. especially when there are obstacals like shoes or toys and those things are just a given in a house with 6 kids and not enough space. Sophie has figured out how to feed herself and is doing great with that. Soup is hard because its in a bowl but if its on a plate she does a great job with little mess. but they are getting along in their new world pretty well.