Shriners visit

So we went to Shriners yesterday. I dont know what I was expecting but I guess I thought that since they were already 4 and 6 they would be a little more aggressive. I am mostly ok that they arent. At this point for hands we are only splinting them both at night. For Ben that might be enough. Sophie however is more severe. We dont go back until March 17 to see the hand guy.

He also suggested that Ben may have cranio synostenosis.(I think thats what its called) where the sutures in the skull fuse before they should making a misshapen head. He said it can be problematic but often is just cosmetic. I want him to be all he can be but I really dont care if his head is asymmetrical. It isnt so much that anyone else noticed it. If it is causing a problem he will have increased pressure in his head. so since he needs to see an eye doctor anyways they will be able to tell if there is increased pressure and if there is then we will do a CT and go from there.

they also fixed bens broken AFOs (with purple straps which sent Ben into squeals of happiness when he saw them!)and fit both kids for new ones. Sophie screamed bloody murder through that. it wasnt painful but she just didnt like it. She doesnt like to be touched by medical people, ALL Of them are owies to her no matter what they do. Ben was more observant. He knew right away what pattern he wanted on his new AFOs. Blue camo with purple straps. Sophie chose fairies, we told her it was tinkerbelle because they didnt have tinkerbelle and she kept asking for tinkerbelle with hot pink straps. Unless they are out of fairies then she will get purple camo and hot pink straps. Ben's back up was stars with purple straps.

Next appointment is the lowers guy in January. The kids each brought home a stuffed animal and Ben has been carrying his little dog around everywhere ever since. he says its fabio(our dog). he is very cute.

We took the kids out for Indian food after appointments. They served Indian food on the flight home from Ukraine and neither kid would even taste it. yesterday they ate theirs they ate mine and they ate from anyone who was offering(not just anyone, I meant daddy and maia or each other). Gosh I love Indian food. The owner was very kind and in talking to us we found that Sopha (sophie calls herself sopha) means light in India. she is the light of my life so thats pretty appropriate. Both kids were really angels at lunch. and then the girls slept all the way home. Ben didnt sleep a wink.