Arthroadventure

This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Sunday, September 26, 2010

New DOCTORS new plans and new CASTS!

well let the adventures begin! sophie and ben are both in LONG LEG CASTS. both kids both legs. straighten out those crazy feet. this doctor is RUTHLESS in getting these feet into position. its hard for us to deal with as it hurts the kids a bit as the stretch is so tight. but this COULD be all Ben needs to have straight feet. we thought he had a rotation and would need a derotation but he doesnt! its all in his foot! hoping this works to avoid surgery until he is much older. Sophie on the other hand this is just the beginning for her little legs. the stretch is very tight for her and she complains a lot. but once she gets these feet straightened out we will work on her hips. then her knees. For Sophie's hands we will do nothing for the time being. As she needs her hands to motor. Ben needs one surgery on his one hand. its fairly minor when you consider what COULD be done. tendon transfer will solve most of his hand problems. It is a pain to go to philly for good care but we just werent finding it locally.

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