amazing Sophie and Wonder Ben

boy the things these two have been doing! they are headed to Philly the end of the month to see a doctor who actually has hope for them. After a year of seeing doctors who are misinformed about AMC, refuse to do anything for them, or are just plain not interested we are excited that someone sees them as we do, untapped potential. Looking back over the last year Sophie has gone from being unable to do ANYTHING for herself to doing all kinds of things. She can sit up, roll over, scoot, crawl, kneel, go down stairs, feed herself, and use a cup, and now do you know what she is doing? lifting her knees to make them come together as she sits on her bottom. Think butterfly. if she was to sit on her bottom her legs naturally fall open like a butterfly. but with effort she can LIFT them up. this is huge for her. she was not able to lift them even an INCH a year ago.

Ben has gone from toddling to walking and RUNNING. he doesnt run fast like other kids but he definitely runs. and he has learned to feed himself dress himself put on his afos put on his shoes take off his clothes shoes and afos and is learning to pedal a bike! that is hard work pedaling a bike! When we came home with him we had little hope of him riding a bike. but now? perhaps there will be a family bike ride in our future. I think we might have to look into an adapted bike for him.