Arthroadventure

This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Friday, January 15, 2010

do these look like normal feet? sophies arent as bad. first photo sophie, then bens



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7 comments:

  1. Nan and DanJanuary 18, 2010 at 10:30 AM

    oh man! poor littles. And to think they had surgeries to FIX them!!
    Can they still be fixed here?

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  2. MoonDogJanuary 18, 2010 at 11:53 AM

    well the doctor we saw said no. but we arent at all pleased with him so at this point who knows.

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  3. ValerieJanuary 18, 2010 at 2:46 PM

    Yes! They can still be fixed and likely without additional surgery. Serial casting (when done correctly and by someone who is familiar with amc) can acheive AMAZING results! Evan's feet were severely clubbed when he came home from Ukraine, but a soft tissue release and two rounds of serial casting later (about 9 casts total) his feet are straight and flat! Now, his toes still look a lot like Ben's (they overlap and one actually looks like it is upside down), but that is not uncommon for AMC.

    After Evan's clubbed foot surgery his feet looked a lot like Ben's do now. Our doctor told us that was as good as it was going to get. Then we went to Philly. The first thing they did was put him in serial casts and I could not believe the difference it made!

    There will always be regression with AMC because the contractures are extremely tight, so the key to maintaining the results acheived through surgery and casting is effective bracing while they are still growing. If the braces don't fit just right, it will leave room for regression (this is what happended to Evan when he went back into KAFO's after his last sugery and we had to go back and do another round of serial casting). So it is also REALLY important that your doctor work closely with your orthotist to acheive maximum (and lasting) results.

    Those feet CAN be flat and straight so don't take no for an answer!!!

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  4. Sherry WhiteJanuary 22, 2010 at 1:12 PM

    But they are awfully cuuute! ;-)

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  5. MoonDogJanuary 23, 2010 at 3:05 PM

    sherry gotta live little piggy toes!

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  6. LydiaJanuary 25, 2010 at 6:25 PM

    Both my daughters had feet like that. Come to NC and see Dr. Campion at UNC. He is AWESOME!!!!! I'm glad to find you again- I've been out of touch too long:)

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  7. MoonDogJanuary 26, 2010 at 7:46 AM

    you sure have been out of touch too long!! the crazy doctor we saw here said thats good as it gets.

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