Arthroadventure

This blog is about our journey with Arthrogryposis(AMC). It is not just a walk in the park. Flying all over the country for medical treatments for our two kids. Therapies and surgeries. Not always fun but always necessary.

Wednesday, October 14, 2009

the kids are home

but we are not going to rush into any medical stuff for a bit. We want them to learn home and family and mama and papa first. They need to know that we will be there to comfort them. Ben's little feet are still curled up in his AFOs. they are going to need more work. Sophie's little hands are so twisted and her elbows dont bend so its hard to do anything like get dressed or eat. Her thumb is in her palm on both hands. Her knees are at about 90 degrees all the time. I am anxious for them to be better so they can do all the things other kids do but at the same time not anxious for them to be in pain. if anyone has any thoughts per adaptive devices I would love to hear.

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