sophie can crawl she can also get herself to tall kneel on one leg

while I was in Ukraine

Sophie decided to take it upon herself to learn to crawl! she is crawling more and more every day!! amazing incredible beautiful wonderful child of mine!

I heard it through the grapevine

that my Sophie is CRAWLING!

update

one more cast for ben. he now has afo and cast and is walking great. cant wait to see him in TWO afo and shoes. he will be great! you should see him take the front steps now. they arent that big and there are only two but there is no rail and he has gone from completely unable to navigate it and climbing down on his bottom, to walking up or down it no problem just like everyone else without even a wobble. I am always amazed at how far he has come.

Sophie's appt with Dr S didnt go so well. He says she has weakness in her shoulders and back and chest that she/we can work on and she CAN hold her arm out in space without letting it drop. so thats encouraging. but he didnt see a lot of hope for her legs. I just cant seem to understand. they can put a man on the moon but they cant undo a knee contracture? he said serial casting might work. he was willing to give it a try. he also thought she could have those hands rotated serial casting rather than surgery. but why cant anyone do anything about her legs? she has quads. we know that. all she needs is legs in the right position? I dont expect her to run any marathons. but is it too much to ask that she be able to transfer and walk a little within the house? this would go a long way towards helping her to be independent in life with self cares and living alone. We adore her but we want her to grow up and move out like all our other kids! she is so smart, I know she will want that too. but if she cant take care of herself how is that possible? after I get home with the girls and get settled maybe we will have to take a trip to philly. its our last shot.

I just found out there is a family in minneapolis and also of two families in St cloud(which is even closer and I go there often) who are affected by AMC. I think we should start a local support! I need it! surely others do!

bens foot in resting state was at 35 degrees. after one weeks casting it was at 22. It was casted again at 15 and will see how that goes. since we are having such great success we might do the other one too. he chose yellow for cast this week. he was a little scared of the cast cutter but did ok. being a sentimental mommy I kept his purple cast. I dont think I am going to keep them ALL! but hey it was his first! cant wait for sophie to see dr S in late may. hoping we can have some great results for her as well.

ben and first casting- purple of course